A Guide for Handling Insensitive Comments Regarding Our Illness
May 12, 2025
It was recently I had someone say these words: "I could never deal with having an illness for the rest of my life. But, god bless you." My instant thought was, “Why would anyone say that aloud? Let alone to me when I will, in fact, live with multiple sclerosis (MS) for the rest of my life!” I kept my composure while trying hard not to say some explicit words. I gave a slight smile and found a quick excuse to make my exit. Living with MS comes with difficulties. However, one of the most...
Understanding When to Adjust or Stop MS Medications: What You Should Know
May 12, 2025
Rethinking Long-Term Treatment for MS Over the past few decades, medications that modify the course of multiple sclerosis (called DMTs or disease-modifying therapies) have transformed how we treat this condition. These medications are especially helpful when started early as they reduce relapses and can slow down disability. But here’s the question many people eventually ask: “Do I have to stay on these medications forever?” This is exactly what a team of MS experts from around the world...
MS Journey
April 11, 2025
I was diagnosed with multiple sclerosis when I was 26 years old, though I knew something was wrong for months. I couldn’t stay awake. I was confused. I had memory loss, numb feet, blurry vision, and sometimes saw double. But because I was overweight, almost every doctor I saw told me to lose weight, as if that would solve everything. They weren’t entirely wrong—I did need to lose weight—but weight loss wasn’t going to stop the flare that was happening in my spine. I was 25 when the symptoms...
