Finding Hope in the face of Uncertainty: Learning to Live with a rare Neuroimmune Disorder
June 13, 2025
This year in August it will be 10 years since my life changed forever. In August of 2015 after returning from a beach vacation, something didn’t feel right with my legs so I checked myself into the Emergency Room at NYU in New York City, a few blocks from my apartment to see what was going on. My legs felt like they were cramping or I was dehydrated - it was a strange feeling in my muscles but not overly alarming. The hospital sent me home and gave me muscle relaxers. The next day I was...
In the Infusion Room
June 13, 2025
At the Weill Cornell MS Center, intravenous medications are administered Monday through Friday on varied schedules by a group of experienced and compassionate nurses: I am Oasia, one of the regulars. Welcome. I'll greet you when you arrive, tell you all about your day, and answer your questions (the more philosophical, the better). The Weill Cornell MS Center provides comprehensive care for patients with multiple sclerosis (MS), optic neuritis, and other autoimmune disorders of the central...
A Guide for Handling Insensitive Comments Regarding Our Illness
May 12, 2025
It was recently I had someone say these words: "I could never deal with having an illness for the rest of my life. But, god bless you." My instant thought was, “Why would anyone say that aloud? Let alone to me when I will, in fact, live with multiple sclerosis (MS) for the rest of my life!” I kept my composure while trying hard not to say some explicit words. I gave a slight smile and found a quick excuse to make my exit. Living with MS comes with difficulties. However, one of the most...
